Mito/Dravet/Pediatric life limiting illness/Medically complex/There is no planning Courageous Parents Network 3:07 10 years ago 356 Скачать Далее
Mito/Dravet/Pediatric life limiting/Keeping your medically complex child at home. Courageous Parents Network 2:18 10 years ago 634 Скачать Далее
Mito/Dravet/Parents talk about acceptance regarding son's life limiting illness. Courageous Parents Network 2:13 10 years ago 435 Скачать Далее
Mito/Dravet; Parents share that the disease happens in phases. Courageous Parents Network 3:46 10 years ago 888 Скачать Далее
Pediatric life limiting illness, medically complex/Trying to limit regrets about care. Courageous Parents Network 3:53 10 years ago 144 Скачать Далее
Mito/Dravet/Living with a child with a life limiting illness, and trying to find time as a couple. Courageous Parents Network 2:11 10 years ago 183 Скачать Далее
Mito/Dravet/Parents talk about the challenges of end of life planning. Courageous Parents Network 1:35 10 years ago 269 Скачать Далее
Rare pediatric disease, medically complex, life limiting/Stopping the medication. Courageous Parents Network 1:35 10 years ago 391 Скачать Далее
Mito/Dravet/These parents of a critically ill child share how they practice self care. Courageous Parents Network 3:35 10 years ago 140 Скачать Далее
Mitochondrial disease, medically complex/Working with palliative care on pain management. Courageous Parents Network 2:03 8 years ago 176 Скачать Далее
Mitochondrial disease, Dravet syndrom/A mom shares how she has embraced this new world. Courageous Parents Network 3:09 10 years ago 2 070 Скачать Далее
Leigh's, Mito, Support, Medically Complex/ Parents discuss the transition from the hospital to home. Courageous Parents Network 2:11 2 years ago 750 Скачать Далее
Leigh's Disease/Mito/The adjustments of having a medically complex child. Courageous Parents Network 4:07 2 years ago 1 324 Скачать Далее
Parenting a Medically Complex Child: Palliative Care helped us plan his end-of-life at home Courageous Parents Network 4:37 5 years ago 1 357 Скачать Далее
Mito/Taking your child with a life limiting illness for a outing. Courageous Parents Network 2:46 8 years ago 212 Скачать Далее
Mito/Plans constantly change when your child has a life limiting illness. Courageous Parents Network 2:20 8 years ago 55 Скачать Далее
Mito/A parent's perspective on the logistics of having a child with a life limiting illness. Courageous Parents Network 2:03 8 years ago 309 Скачать Далее
